More Seizures :( :(

It has been a long time since I posted last and so today, on my lunch break, I'm going to post just for a few minutes. Coy had a 3T MRI that showed no structural malformations which does not make him a good canidate for surgery at this time. However, he had another seizure episode the first weekend of November. It had been four months since his previous seizure so we were thankful for that. This one did not seem to be as severe as some of the others but I feel like it was because we caught it just as it was starting and was able to give him his Diastat almost immediately. He still ended up in Kosair for the majority of the weekend but most of that was just waiting on the Neurologist to show up and talk to us. So far, we have resisted adding a second medication to his maintenance medicine. Primarily because of the concerns that we have of how the medicine that was recommended to us could potentially change his personality. It is a scary thing to think about giving him a medicine that could alter his personality but it is also scary living with the fear that we might not catch his next seizure soon enough to get him the medical attention that he needs. During his last episode, we requested that he be taken directly to Kosair's but the ambulance driver did not comply. Apparently, because of the ambulance that we received, their policy is to take them to the nearest hospital to stabilize the patient first and then move him on to a specialty hospital only after they are stabilized. Coy's oxygen rate had gotten fairly low so they didn't risk getting him to Kosair's immediately. We were not thrilled with the service or explanation that we received from Floyd that evening but needless to say we were releaved that everything turned out OK this time. He is now on what I would consider a very massive dosage of his medicine for a 50 pound child. As of now, he seems to have very little if any side effects to this medication. We hope that continues to be the case and that future seizures can be more easily managed. He is such a sweet, sweet boy and brings a smile to the faces of everyone that he meets. He doesn't know when his seizures are coming and he has no recollection of anything that happens during them. I am hoping to video tape one of these seizures for the purpose of showing the doctors what he does when he seizes. Somehow though, when it starts happening, the last thing that I think about is getting the video camera to tape him. During the last seizure, Caleb and Katie were asleep and the EMS and ambulance did not wake them up at all. It wasn't until morning that they learned that Coy had had another seizure.